Things you might like to know...
Wednesday, July 25, 2012
Take time to smell the roses
When I walk home with Jules, my 9 year old son, from school we pass a house which has roses in the front garden. These are not the weedy, insipid offerings you see on garage forecourts, these are big, blousy, fragrant roses - the old fashioned ones I remember from my childhood. And more often than not I stop to smell them. Just have that moment, breathing in their heady scent, before the chaos of the evening descends.
Labels:
costello syndrome,
gastroenterology,
Great Ormond Street,
Growth Hormone,
intestinal failure,
Mitrofanoff,
Palliative Care,
special needs,
Stoma,
TPN
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Websites close to my heart
- Shooting Star Chase (Daisy's Hospice)
- Great Ormond Street Hospital Children's Charity
- Torbay Holiday Helper's Network
- Sick Children's Trust
- Daisy's Angels - Facebook Page
- About Costello Syndrome
- Asperger Syndrome
- Caudwell Children
- Together for Short Lives (Children's Hospices in the UK)
- Costello Syndrome Support Group
- Give Kids The World
- PostPals - Putting Smiles on Sick Children's Faces
- Singing Hands (Daisy is their No1 Fan!)
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