Until Daisy's arrival I was a driven, ambitious, marketing professional, working full time and worrying about childcare, global warming and the best route to get to work.... This all changed when she came into our lives. Daisy was born prematurely and soon afterward was diagnosed with a rare genetic condition - Costello Syndrome. At the age of 3 she developed intestinal failure and since then has to receive all her nutrition directly into her bloodstream via a central line into a main vein near her heart.
Suddenly I was confronted with a situation which was not in the plan, my career went out of the window and I found myself a stay at home mum of a small, vulnerable girl with very complex needs. If that wasn't enough, not long afterwards my eldest son was diagnosed with Asperger Syndrome and we found ourselves on yet another special needs learning curve.
My life has been turned upside down and I have had to question and and confront so many things about my life and the situation I have found myself in. This blog is about my rollercoaster parenting journey and how I (just about) manage to hold it all together........or at least try to!
Have a look at this post I wrote explaining why I blog - Why I do it?
I tweet as @stephnimmo and you can find us on facebook at www.facebook.com/daisysangels
2 comments:
Recently, I was awarded "The Lovely Blog Award". It's a beautiful pass it on award and I simply couldn't not nominate you (blow double negatives!). Thank you for your wonderful writing and your wisdom which is slowly teaching me to remember myself in the midst of chaos! http://simpletangles.wordpress.com/2012/10/22/moved-to-tears-ive-been-awarded/
aah bless you Benedicte! As I said before we have so many parallels in our lives - I think another one for both of us is the therapeutic benefit of writing xx
Post a Comment